Our daughter, Nadezhda, was diagnosed in May 2010 with Dravet Syndrome at age 3. It is a rare and severe form of epilepsy. This blog is for updates on our lives, our thoughts, and feelings. Everyone needs a voice, and here, ours may be heard.
Also, while epilepsy is often misunderstood, Dravet Syndrome is altogether unheard of. We would like to be informative about Dravet Syndrome and supportive for others dealing with similar circumstances.

Monday, July 18, 2011

Our Blog COULD WIN an IPAD for Dezh!!

Hi Friends - I feel like I am turning into a beggar on the side of the road because I am back asking for more help! A fellow Dravet Syndrome Mom nominated our blog to win an ipad and special needs apps to help Dezh develop cognitively and in fine motor skills.  This mom has one for her son and has noticed some improvements in him.  Also another DS mom that I am close with says hers has been a miracle for their family!  I want that for our family.  If we get 300 votes in the next week and a half or so we could WIN one with the apps included. WTF!?!! That would be pretty fantastic. So, here I am asking for more help from you. Thank you and Sorry. Here is the voting page:https://www.facebook.com/home.​php?sk=question&id=17037888302​9358  .  I think you just click on it.  Also, a friend of mine ( another DS mom) has a blog that has also been nominated.  She deserves this More than we do so perhaps you could click on her blog too??  It is called Our Life At This Moment.  Thanks!

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