Our daughter, Nadezhda, was diagnosed in May 2010 with Dravet Syndrome at age 3. It is a rare and severe form of epilepsy. This blog is for updates on our lives, our thoughts, and feelings. Everyone needs a voice, and here, ours may be heard.
Also, while epilepsy is often misunderstood, Dravet Syndrome is altogether unheard of. We would like to be informative about Dravet Syndrome and supportive for others dealing with similar circumstances.

Tuesday, July 12, 2011


Dezh got a short haircut to help her keep cool this summer.  It has been very nice and easy to deal with.  It is also really adorable.  Take a look:

i guess she got bored

isn't she beautiful!!??

1 comment:

  1. She is soooo beautiful! I will miss her (and you of course) while you are away!!!