Our daughter, Nadezhda, was diagnosed in May 2010 with Dravet Syndrome at age 3. It is a rare and severe form of epilepsy. This blog is for updates on our lives, our thoughts, and feelings. Everyone needs a voice, and here, ours may be heard.
Also, while epilepsy is often misunderstood, Dravet Syndrome is altogether unheard of. We would like to be informative about Dravet Syndrome and supportive for others dealing with similar circumstances.

Tuesday, April 19, 2011

WOW! This makes me HAPPY!!!

When you have a special needs child, the littlest steps are the coolest.  But the big ones are like.... WAY WAY WAY the AWESOMEST!!!!   Check out this video.  She is COOKING!!



btw, she says happy birthday at the very end, but it is not anyones birthday.  she just says that a lot.


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9 comments:

  1. JenniferApril 19, 2011 at 6:05 PM

    LOVE, LOVE, LOVE it!!!!!! YEAH Dezh!!!

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  2. AnonymousApril 19, 2011 at 6:21 PM

    HOOOOORAAAYYYYY!!!!! Go Dezh go!

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  3. AnonymousApril 19, 2011 at 6:25 PM

    Yaaaaaay for Dezh - love those moments! I actually thought at the end of the video she said "how about that" but when I went back and watched a second time she really did say Happy Birthday :) soooo cute! Way to go Dezh!

    Korrin (mom to dillon)

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  4. Paige FigiApril 19, 2011 at 7:36 PM

    Hooray, Dezh!!! So so adorable!

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  5. Living Well With EpilepsyApril 20, 2011 at 4:55 PM

    Love it. Who doesn't want to hear happy birthday any 'ole day of the week! Congrats Dezh, great job.

    Hey, and thanks for visiting the Living Well linkup.

    Best,
    Jessica

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  6. LulucarrotApril 21, 2011 at 1:10 PM

    Nice Eye Hand coordination Dezh! Love you.

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  7. NikiApril 23, 2011 at 3:06 PM

    Just watched it again! Cole says, "Happy Birthday!" all of the time ;) She's so cute!

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  8. BeckyApril 30, 2011 at 2:09 AM

    She is crazy cute! I love her sweet voice.

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  9. Caskey CrewMay 8, 2011 at 3:41 PM

    I miss that girl. I want her to cook for me sometime, she's a pro! Love you guys!

    ReplyDelete

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