Our daughter, Nadezhda, was diagnosed in May 2010 with Dravet Syndrome at age 3. It is a rare and severe form of epilepsy. This blog is for updates on our lives, our thoughts, and feelings. Everyone needs a voice, and here, ours may be heard.
Also, while epilepsy is often misunderstood, Dravet Syndrome is altogether unheard of. We would like to be informative about Dravet Syndrome and supportive for others dealing with similar circumstances.

Growing Pics

1 month old:
so cute
how do you turn the pic?
perfect baby!!!!!





2 months old:
Love her little grin
This is when she was a little black boy for a week.



3 months old:


4 months old:
rice cereal begins!
enjoying the cool chair. 
still having a hard time holding
up her head at 4 months


5 months old:


6 months old:

 

7 months old:

 

8 months old:


9 months old:


10 months old:

 

11 months old:


1 year old:


1.5 years old:

2 years old:

 

2.5 years old:



3 years old:

 




3.5 years old: