Our daughter, Nadezhda, was diagnosed in May 2010 with Dravet Syndrome at age 3. It is a rare and severe form of epilepsy. This blog is for updates on our lives, our thoughts, and feelings. Everyone needs a voice, and here, ours may be heard.
Also, while epilepsy is often misunderstood, Dravet Syndrome is altogether unheard of. We would like to be informative about Dravet Syndrome and supportive for others dealing with similar circumstances.

Sunday, February 20, 2011

Something Cute

Nadezhda has started to say YES SIR in response to our questions.  For instance, today Curtis asked her if she would like some chocolate and she replied, "Yes Sir!"  What makes this even better, though, is that she has a bit of a lisp on 'S' sounds, so it sounded more like "Yeth Thir"!!!!  She is impossible not to love!


  1. We ♥ you and I think about you all often. I'm so glad you're doing this so we can see how you're doing!! xoxo

  2. Dezh. I love her. We need to hang out soon! I feel like I should be the first to know when she says something new:) Love you Gail. Happy Birthday!

  3. She is pretty cute! Thanks for the notes. Things have obviously been crazy around here. We'll have to properly introduce each other. Send me an e-mail!