Today we got to go to church. We usually get to thankfully. I know some Dravet Syndrome kids aren't as lucky because they are more susceptible to seizures than Nadezhda is.
I was thinking today how lucky I am that Nadezhda's teachers in her primary class are so awesome. They are kind and fun and care about all the kids. Even better though, is that one of them is a doctor!!! How much of a blessing is that?!! So although she has an hour away each Sunday from her parents, she is with a doctor who will be able to recognize the signs of a seizure! That is so comforting for me!
Our daughter, Nadezhda, was diagnosed in May 2010 with Dravet Syndrome at age 3. It is a rare and severe form of epilepsy. This blog is for updates on our lives, our thoughts, and feelings. Everyone needs a voice, and here, ours may be heard.
Also, while epilepsy is often misunderstood, Dravet Syndrome is altogether unheard of. We would like to be informative about Dravet Syndrome and supportive for others dealing with similar circumstances.