tag:blogger.com,1999:blog-1782503187876615425.post7159239376417416003..comments2023-03-24T14:49:33.729-04:00Comments on Our Family: Us, Dezh, and Dravet Syndrome: On a Sort-of Related TopicGail Bhttp://www.blogger.com/profile/07007785309634931051noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-1782503187876615425.post-24826238390926980152011-03-07T14:07:03.235-05:002011-03-07T14:07:03.235-05:00Just hopped over here from Savannah's blog. I...Just hopped over here from Savannah's blog. I've only had a chance to read your first couple of post and just HAD to respond on this one. NO ONE cherishes every moment. Yes...there are moments to be cherished but not EVERY moment. I think people tend to just blog about the positives. Because it is sometimes hard to put your negative thoughts out there...in fear of being judged too harshly. So from the 2 posts of yours that I have read...you seem perfectly normal ;)Sophie's Story by Elainehttps://www.blogger.com/profile/00415731740298071423noreply@blogger.comtag:blogger.com,1999:blog-1782503187876615425.post-28127520567651289172011-03-01T16:38:48.134-05:002011-03-01T16:38:48.134-05:00Hey! I haven't seen you in forever and I just...Hey! I haven't seen you in forever and I just found this blog, from your original. I always check that old one and wonder how you life is going. Now I know and I love that. You are so great and so strong. I loved back in the day when we were able to hang out a lot and get to know each other. You are an amazing person, keep it up! I do have a question, and I hope it doesn't seem to foolish (I really did just find this blog today), who is Drake? Love ya, TessaBlaine & Tessahttps://www.blogger.com/profile/10884549996934304241noreply@blogger.comtag:blogger.com,1999:blog-1782503187876615425.post-76911121351963023362011-03-01T01:01:58.624-05:002011-03-01T01:01:58.624-05:00I think everyone feels that way about their kid so...I think everyone feels that way about their kid sometimes. I always love them but I DO NOT always like them. My mother in-law told me she often went into her kids bedrooms at night to watch them sleep just so she could remember to like them.<br /><br />Love you.Beckyhttps://www.blogger.com/profile/08415807611047300636noreply@blogger.comtag:blogger.com,1999:blog-1782503187876615425.post-61085146211505860872011-03-01T00:56:08.838-05:002011-03-01T00:56:08.838-05:00Girlfriend! Because behavior issues often come wi...Girlfriend! Because behavior issues often come with Epilepsy. ADD, delayed development, sensory processing issues, etc. And, I bet that when a neurologically intact child does something wrong, the parents can assume they will grow out of it. Sometimes with our kids, we aren't so sure. So often when I am mad or ticked with Savannah it's really because I have panic and anxiety over that behavior ever going away. The road you walk unfortunately is a very hard one that only you and Curtis walk. It's great to set goals and try harder for patience but Heavenly Father knew what he was doing when he gave her to you. He knew how much patience you have and it is enough. Love you. Keep it real, it is hard and other mothers are probably feeling very relieved right now knowing you have the same struggles they do.Lulucarrothttps://www.blogger.com/profile/16842048152515646130noreply@blogger.com